Mandy Lonergan We are on a mission to raise awareness world wide for Sturge-Weber by getting Ellen DeGeneres on board! We are little fish in a BIG sea but with determination, passion and people power we believe we can do this. We have been given an amazing gift of kindness, a trip to America this year to attend the Sturge Weber Conference, by a fellow SWS family The Duffys. We ultimately want to thank them on Ellen and surprise the heck out of them. They have NO idea about what we are doing. They arent on Facebook. So if you know them, please keep it secret squirrel! We have made two videos. One from Sophias perspective, she is 18 months old and has SWS, and one from us explaining our campaign idea and what Sauce Ya Face for Sturge Weber is all about. So jump over to our Facebook page facebook/ellenmeetssophia watch the videos, share the love, take your own saucey selfie, nominate three friends to do the same and share with the world! Please share this with all your circles. Friends, family, SWS community, medical, schools, ELLEN if you know her and work. Anyone and everyone! As we say, Sturge Weber is not contagious but awareness is! For those WITH a PWS already, we are cooking up something for you to help with separate to the saucey business! You guys have the ultimate saucey face you rock all day every day! So share and we will keep you posted... Much love. Mandy, Ryan & Sophia Lonergan Email us at ellenmeetssophia@outlook
Posted on: Thu, 22 Jan 2015 15:07:21 +0000
Trending Topics
Recently Viewed Topics
© 2015