Many of you have asked why we don’t just approach the ALS Association (ALSA), who received more than $100 million in donations through the Ice Bucket Challenge, for the funding needed to bring MicroNeurotrophins to clinical trial. The answer is we have. We are in contact with ALSA and are in the process of seeking a grant from them for the ALS MicroNeurotrophin Research Consortium, but we are one of many organizations waiting in line to request funding from them. Further, ALSA has recently stated they won’t begin to request proposals from smaller ALS/MND organizations, including ALS Worldwide, until spring 2015 at the earliest. As you will see in this inspiring video by Snatak Eymundur Kjeld from Reykjavik, Iceland, ALS/MND patients simply don’t have the time to wait and neither do we. The Ice Bucket Challenge showed us that people want to contribute directly to research. You want to see your money actually making a difference in treatments available to patients. Donating to our Indigogo crowdfunding campaign at igg.me/at/newALSmedication is a way for you to contribute directly to bring a specific treatment—vetted by experts and supported by an international consortium of research teams—into a clinical trial in just 12 to 18 months. This is a concrete way for you to make a difference right now. 100% of all donations will go directly to the efforts of the ALS MicroNeurotrophin Research Consortium
Posted on: Tue, 18 Nov 2014 18:11:14 +0000
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