March 17 fact: In 1982, the Centers for Disease Control (CDC) reported the first case of HIV/AIDS among people with #hemophilia, and concerns began to grow that the blood supply was tainted. Despite warnings from the CDC, leaders in the hemophilia community encouraged patients to continue using clotting factor (more information in the link below). In 1983, several manufacturers begin the development of heat treated factor concentrate, after testing shows the process kills the HIV and hepatitis virus. In the midst of fear and confusion, Ryan White and the Ray family emerged as spokespersons for those living with hemophilia who contracted HIV/AIDS, especially when Ryan and the Ray children were denied entry to school. After winning a court decision in 1986 that allowed the Ray brothers to return to school, their home mysteriously burned to the ground. Media coverage of this tragedy is often considered a significant event in the history of HIV/AIDS in the United States. During the mid 1980s, many hemophilia families became isolated due to fear of discrimination and persecution of being identified as HIV/AIDS positive. Other families with hemophilia turned to action and demanded information/answers on why this had happened: tiny.cc/rkevcx
Posted on: Mon, 17 Mar 2014 14:43:04 +0000
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