Meet Addilyns friend, Lily. Shes super sweet and very loveable. Her and her family are working hard in Maryland to have a law passed that will make testing for Krabbe disease mandatory at birth. Early detection and intervention is what alters these innocent lives. There isnt a single child that deserves to have the death penalty nor a single parent to feel that indescribable heartache. Please visit her page, say hello and see how you can help them make a difference. Team Addilyn (Addilyns Journey of Hope) isnt giving up on making testing mandatory here in the state of Maine we are awaiting our next opportunity. Weve been knocked down once but we get back up swinging! I will fight long and hard - day in and out for what I believe all children and parents deserve. A chance at life!
Posted on: Fri, 17 Jan 2014 07:55:40 +0000
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