Mr Jeremiah is doing WONDERFUL! ♡ He is back down to 25 to 30% Big step! We talked with the doctors to see what requirements Jeremiah had to have in order to go to a Home ventilator... First of all Jeremiah was very close to a home ventilator trial but now since he became sick it has been put off for a while we need Jeremiah to stay good for a while we need Jeremiah to need the least amount of oxygen possible we need him to do most of the work on the ventilator and we need him just to be stable for a long period in order for us to go to the Ticu and everything in order for us to come home.... They change some of the settings today on the ventilator because as some of you know even though Jeremiah has been on a ventilator he likes to most of the work himself so the changes they made today to the ventilator Jeremiah will do most of the work and vent will help him out on every other breath! We shall see how this works and if he does we will start to win down on the pressures So fingers crossed for a Christmas discharge!!!!!! As far as we know now surgeries have been put off again for a while.... Right now we just need jeremiah to grow not only physically but lung wise we need his lungs to grow and mature..... As for today he had a great day the physical therapist came by wrap both of his feet to work on the clubbed feet he handled it very well we got him dressed and up and out of the bed he got to get up and see things he did great the physical therapist even made him like a leg band that you see in the pictures that I posted it wrapped around his knees to help try and keep his hips in he seemed to like it so Fingers crossed this will help him♡♡♡♡♡♡ Just keep praying for him and for us he continues to overcome every obstacle that the doctors have thrown at him he us everyday that God works miracles
Posted on: Tue, 30 Sep 2014 03:07:04 +0000
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