My Timehop from exactly one year ago today was such an important one when it comes to promoting more awareness of just how awful a disease #Lupus really is, that I just wanted to share my post again in full. I would never ever wish it on my worst enemy (if I have an enemy per say...) My mouth is so full of sores that eating bread is like eating glass. By the time I was diagnosed I was near death. I was misdiagnosed for years. All of the three statements at the start of this ad for Lupus Awareness applies so precisely to me that I could have scripted all three comments from my own personal experience, unfortunately. My fellow Lupie friends will all most likely agree with me, although Lupus affects each individual in its own unique way as your white blood cells attack your red blood cells and cause organ damage, tissue damage, joint damage, rapid bone loss and even death. And yet, unless you have a charactreristic Lupus discoid rash or lose your eyelashes and/or hair as I did after a really severe attack, many days those of us with Lupus might not even appear sick to others. Little can others truly see the almost overwhelming chronic fatigue and constant pain that rule most of our lives that many days makes it difficult to even accomplish the simplest of tasks without being totally exhausted for days. Even after getting 9-10 hours of sleep each night, since it truly often takes a minimum of about 12 hours each night to even feel a bit more human the next day. And those are on the no-flare good Lupus days...More Lupus research is desperately needed to help find out more about some of the causes of Lupus and possibly find a cure. Im so proud of all that Andrew Grumans employer FOX Sports is doing to help promote and donate to finding a cure for autoimmune disease research! ~LUPUS IS A CRUEL MYSTERY~ It’s one of the cruelest, most mysterious diseases on earth. Lupus strikes without warning, has unpredictable, sometimes fatal effects, lasts a lifetime, and has no known cause and no known cure. There’s more to lupus than meets the eye; It is difficult to diagnose, hard to live with, and a challenge to treat. Lupus is hidden from view because people often times may not look sick. It is more pervasive than people think, and strikes on a scale that the public does not realize. The Lupus Foundation of America is embarking on a cross-country quest to solve the cruel mystery of lupus and end its devastating impact. We are going to communities across the nation to educate individuals with lupus, their families and their healthcare professionals, raise public awareness of lupus, and to urge Congress to increase support for lupus medical research. Join us in the fight to end lupus. Learn more about the “Help Us Solve the Cruel Mystery™ National Tour”. Help promote #LupusAwareness
Posted on: Thu, 04 Sep 2014 17:36:19 +0000
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