My daughter Jenna was born with SWS and her Uncle Al is devoting - TopicsExpress

My daughter Jenna was born with SWS and her Uncle Al is devoting his life to help find a cure!!! Al has begun his East Coast run to raise awareness and funds for the research of Sturge-Weber Syndrome. We are pushing for that cure as soon as possible. What better way that to get on the road and talk about, share the stories and gain support of those that have never heard of this rare disease. For those of you that live with SWS in your life, join us in this fight. Getting involved doesnt create much work for you. We will handle all that. Message me and I can tell you more about the opportunities we have for you to help us in this endeavor. The first, and most simple way, is to tell your SWS story here on our page so people can learn more about how it affects each of our lives. Like our page, check out our website and follow Als blog on this journey. https://facebook/runningthecoast runningthecoastforacure.org celebratehopefoundation@gmail

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