My daughter is 2 and she was diagnosed in August with a Chairi 1. - TopicsExpress

My daughter is 2 and she was diagnosed in August with a Chairi 1. It appears that she is just starting to have painful systems. Because it wasnt hurting her, we opted to not do surgery. Previously it was just physical developmental delays (speech, walking, eating). We think that she is have ringing in her ears, vision issues and as of this morning, headaches when her hair is up in a pony. Since she isnt very verbal, it hard for her to tell us anything hurts or that she cant see, etc. Friday we go to the NS and Im afraid that he is going to want to do it. Those of you who are parents of a chairi child, when did you finally decide on doing surgery?

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