My heart is breaking......my little man defeated the odds time and time again.......and fought this evil called Cancer with a smile on his face. But, he finally grew just a little too weary and went home to glory yesterday, September 26th at about 9:30 pm. We read him a book called I wonder what you do on your first day in Heaven and personalized it according to him as I read. Then the rest of his family, his grandparents and uncle from up north rushed in to touch him and love on him. Moments later he took his last breathe........ Christians whole team of medical staff continually said Christian had something special and that his smile was infectious. One of our fav pain doctors said no matter how hard the obstacle Christian was up against -he always leaned towards happy...what a great compliment to hear as a parent. Often a new doctor would come on for the week and shake his head at the wonderment of what Christian was capable of doing.....because according to what he looked like on paper as a result of scans and numerous tests, he shouldnt be doing much of anything. Those things consisted of twisting and turning sideways in bed, riding full speed ahead in a wheelchair giggling, imitating every animal sound to perfection, eating more then any kid on the floor( they were especially amazed when he managed to put away almost half a three way on Monday night)......going to physical therapy and swinging on their swing....not to mention being able to take a trip to the aquarium! Another fav doctor from his team remarked Remind me again why we are treating this kid!:) if you Even in PICU, he managed to strum the guitar and shake his little shaker when Katherine from music therapy came in....he wanted to watch Peppa Pig and hold his little figurines in his hands when we was laboriously breathing. The last real words he said before needing medication to sedate him and keep him from being so anxious as his heart rate continued to esculate were: eat, this( he wanted a drink and pointed,) happy( Yo Gabba Gabba was on) and No ( with some enthusiasm) when his Uncle Derek and Daddy kept trying to cover him up. At one point when I though he was sleeping, I started singing our song you are my sunshine and Christian started humming and singing along with me.....his dad and I were both incredulous....and I kept singing and with such clarity, he looked at me and ran his fingers through my hair which he loved to do often. I could barely move and then he fell back asleep again. :( If you could have seen the size of the tumor and the wound that encompassed his whole bottom, as well as the things it did to his insides...Christian would be your hero too. I love that baby with my entire being - he was my whole life and now I have to make sure his purpose shines on. Pediatric cancer has to be stopped. I want to thank you all for praying for Christian and loving and supporting us all...his grandparents, his uncles and aunts, and cousins: both honorary and family, as well as his friends who took such good care of him. Thank you for helping with his medical expenses. But now, we are faded with planning and paying for a funeral that we had hope would never happen. We truly thought God was going to heal him differently then He did.....but we are still grateful for his complete healing in Heaven. Please pray for us and if you can contribute to Christians funeral expenses in any way, we would much appreciate it.....
Posted on: Sat, 27 Sep 2014 17:26:42 +0000
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