My heart is so full these days... I havent lived such a normal existence since diagnosis and I am truly relishing in the special moments. I was able to go to Mikas parent/teacher conference and literally cried all the way home because of how grateful I am for both of my beautifully amazing ladies and husband. We have enjoyed a ton of family and friend time. The fear is always there that this could change at any moment but it gives me that much more perspective on each special moment we share. We have so much more treatment, tests, travel and stress to come and I hope with everything in me, we are able to stay on this protocol. The other day Scott and I had to take both girls to the doctor because Mae broke her finger and Mika had to get her flu shot. I felt so bad for Mae because of course its the last thing she needs but all I could keep thinking was how grateful I was to have normal reasons for the doctor. It was the first time I had stepped foot in a regular pediatricians office in over nine months. It was a comical office visit and I turned to Scott at one point while they were both upset and said is it weird that I love today? Im also so overwhelmed with how much people care for our family and have done so much for us. There is a fundraiser in Phoenix tomorrow that is going to be amazing. There was another fundraiser by a childhood friend and it blows me away how many people are willing to help relieve some of the stress that comes with this horrible disease. There are more expenses than I can even explain and just knowing people are willing to help us is not only shocking but warms our hearts so much. The prayers, visualizations, and positive thoughts are everything to us. It truly means the world.
Posted on: Sun, 09 Nov 2014 03:34:47 +0000
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