My mood has been pretty crappy and dark the last few days. I frequently have to stop myself from going places in my mind I really should not, but then again, if this does not give me reason to occassionally have a bad attitude, I am not sure what does? For the first time in a while I am finding it hard to even talk about this and I just don’t feel like facing people right now - I just want to be alone and by myself. Most of all, I just want to scoop Janet and the furbies up and get away to a lonely beach, just the pack, just us alone, leave this behind, even if only for a few days… To make a long story short, I visited my local medical team today and we have now confirmed that the cancer is indeed on the march again. The trial medicine is losing its effectiveness as the cancer is starting to mutate around it. I have no doubt about this as I can feel the firestorm of shooting pains slowly but surely building in my chest again. We do not know what treatment actions we will take yet and it will take a while to figure that out (I have learned over the last year that few things in the cancer world happens fast). The preferred approach when resistance starts appearing, like in this case, is to radiate the resistant spots, so called “spot welding”, to prolong the time the meds can be effective. In my case, of course luck would have it that the resistant area is in an area of my lung/lung lining that is hard to radiate. My local doctor seems very pessimistic that it would work at all. Next step is for my oncologist to consult with a world leading doctor, specializing in my genetic mutation, up in Boston to clarify this. So, for now, it seems as if there are really only two options: (1) Radiate the resistant area and see if we can prolong the effectiveness of the current meds a bit, or (2) switch to traditional hard core chemo which sucks so bad , while having such a low success rate for lung cancer, that I have a hard time even thinking about it. In the meantime, while we figure this out, I will stay on the trial meds as it at least keeps the “brakes” on outside the resistant areas, for now...
Posted on: Wed, 03 Sep 2014 04:50:48 +0000