My wife just put together a time-line for Julianas cancer history since 2007: Juliana’s Medical History Chronology: 12/4/01 Born in Minsk, Belarus 8/26/03 Adopted at the age of 20 months – No history of any major illnesses or injuries. 9/03 Diagnosed with Strabismus 12/03 Surgery to correct Strabismus 2/07 Diagnosed with Alveolar Rhabdomyosarcoma-Stage 3, Group 3 Tumor was in right forearm with metastasis to right auxillary lymph nodes. 2/07 to 1/08 Received 14 rounds of chemotherapy which included 7 rounds of Vincristine, Dactinomycin and Cyclophosphamide alternating with 7 rounds of Vincristine and Irinotecan. She was treated on a phase III COG clinical trial (COG D9902). 4/07 to 5/07 Received 28 radiation therapy treatments to right forearm and right auxilla. 3/11 First Rhabdomyosarcoma Relapse to right thigh with metastasis to right inguinal lymph nodes. 3/11 to 1/12 Received 12 rounds of chemotherapy which included Cyclophosphamide, Vinorelbine and Temsirolimus. She was treated on a phase II COG clinical trial (ARST0921). 1/12 to 2/12 Received 25 radiation therapy treatments to right thigh and right inguinal lymph nodes. 6/12 Second Rhabdomyosarcoma Relapse to chest and abdomen. 6/12 to 5/13 Received 12 rounds of Ifosfamide, Carboplatin and Etoposide. 6/13 to 8/13 Received 50 radiation therapy treatments—25 to her abdomen followed by 25 to her chest. 7/13 Began maintenance chemotherapy while still getting chest radiation—daily oral Cyclosphosphamide. 9/13 Continued daily oral chemotherapy and added IV Vinorelbine (she had two treatments in Sept. and one in October—both were stopped due to neutropenia) 11/13 Continued daily oral Cyclophosphamide and began bi-weekly Vinorelbine at a reduced strength (60%). 1/14 Continued daily oral Cyclophosphamide and bi-weekly Vinorelbine at a 75% strength. 3/14 Third Rhabdomyosarcoma Relapse to right eye orbit 4/14 Received one round of chemotherapy—Cyclophosphamide, Vinorelbine and Temsirolimus. 4/14 to 6/14 Received 25 radiation therapy treatments to right eye orbit. 4/14 to 6/14 Continued to receive weekly IV Temsirolimus while getting radiation therapy. Surgeries: 12/03 Strabismus correction 2/07 Biopsy of right forearm and right auxilla; bone marrow biopsy 2/07 Port placed 2/08 Lung Biopsy 2/08 Port removed 3/11 Biopsy of right thigh and bone marrow 3/11 Port placed 3/12 Port removed 6/12 Hickman placed; bone marrow biopsy 6/13 Hickman removed and port placed 3/14 Biopsy and debulking of tumor in right eye orbit Blood/Platelet Transfusions: 4/07 to 1/08 5 blood transfusions 5/11 to 11/11 5 blood transfusions 6/12 to 11/13 36 blood transfusions and 35 platelet transfusions 3/14 to present 2 blood transfusions and 2 platelet transfusions Hospital Admissions: 3/12 to 3/13/07 Chemotherapy 10/2 to 10/6/07 Neutropenic Fever 2/8 to 2/9/08 Lung Biopsy 4/4 to 4/5/11 Chemotherapy 4/25 to 4/26/11 Chemotherapy 5/16 to 5/17/11 Chemotherapy 6/6 to 6/7/11 Chemotherapy 6/27 to 6/28/11 Chemotherapy 7/18 to 7/19/11 Chemotherapy 8/8 to 8/9/11 Chemotherapy 8/29 to 8/30/11 Chemotherapy 9/19 to 9/20/11 Chemotherapy 10/10 to 10/11/11 Chemotherapy 11/1 to 11/2/11 Chemotherapy 11/21 to 11/22/11 Chemotherapy 6/4 to 6/13/12 Blood thinners, Scans, Hickman placed, Chemotherapy 6/19 to 6/25/12 Neutropenic Fever 7/2 to 7/6/12 Chemotherapy 7/23 to 7/27/12 Chemotherapy 8/13 to 8/17/12 Chemotherapy 9/10 to 9/14/12 Chemotherapy 10/8 to 10/12/12 Chemotherapy 11/5 to 11/9/12 Chemotherapy 12/3 to 12/7/12 Chemotherapy 1/7 to 1/11/13 Chemotherapy 2/18 to 2/22/13 Chemotherapy 4/1 to 4/5/13 Chemotherapy 4/16 to 4/18/13 Neutropenic Fever 5/6 to 5/10/13 Chemotherapy 3/17 to 3/19/14 Scans, biopsy and debulking of tumor in right eye orbit Scans: 2/07 CT & MRI of right arm, full body PET/CT, bone scan 6/07 CT & MRI of right arm, full body PET/CT 10/07 CT & MRI of right arm, full body PET/CT 2/08 MRI of right arm, full body PET/CT, bone scan 5/08 full body PET/CT, CT of right arm and chest 8/08 CT of right arm and chest 11/08 full body PET/CT, CT of right arm and chest 2/09 CT of right arm and chest 6/09 CT of right arm and chest 9/09 MRI of right arm and chest CT 1/10 MRI of right arm and chest CT 5/10 MRI of right arm and chest CT 9/10 MRI of right arm and chest CT 1/11 MRI of right arm and chest x-ray 3/11 MRI of right leg, full body PET/CT, CT of brain, chest, abdomen, pelvis and right leg, bone scan 5/11 MRI of right thigh, full body PET/CT 6/11 MRI of right thigh, full body PET/CT 8/11 MRI of right thigh, full body PET/CT 10/11 MRI of right thigh, full body PET/CT 12/11 MRI of right thigh and pelvis, CT of pelvis, full body PET/CT 3/12 MRI of right thigh and right forearm, chest x-ray 6/12 MRI of right thigh and pelvis, chest x-ray, CT of chest, abdomen, pelvis, full body PET/CT scan, bone scan 7/12 full body PET/CT 11/12 CT of chest and abdomen 1/13 MRI of left leg 6/13 full body PET/CT 12/13 CT of chest and abdomen 3/17/14 MRI of right eye orbit 3/20/14 full body PET/CT Current Medications: Bactrim single strength (400/80mg) twice a day on weekends only Megace 40mg/mL 3mL twice a day Loratadine 10mg once a day Pantroprazole 20 mg once a day Vitamin D3 1000 units once a day Zofran 4 mg every 8 hours as needed for nausea Dexamethasone 2mg every 12 hours as needed for nausea Ativan 1mg every 6 hours as needed for nausea Levofloxacin 250mg once a day during periods of neutropenia
Posted on: Fri, 18 Apr 2014 20:47:32 +0000
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