Myasthenia Gravis Awareness Month Day 29 This was written by my friend Miriam,sadly her teenage daughter has had MG for several years. As we near the end of June, Myasthenia Gravis Awareness Month, we have cause to celebrate. Two of our dear friends have survived yet another Myasthenia crisis. There are several support groups for Myasthenia Gravis sufferers and those who care for someone with MG on Facebook. We cope with humor and by propping each other up, physically and emotionally. We send packages, prayers to each other and sometimes get rude and hilarious in private. We are a tight knit group of people who truly care about each other and if you attempt to take advantage or disrespect one of us, be prepared to deal with us all. None of us will ever forget the warriors we have lost to MG, Joe, Julie, Safa, BB, Steven to name only a few. There needs to be more awareness of this rare neurological disease, sadly especially amongst the medical community. There needs to be more money spent on research and more energy devoted to that research. There needs to be more compassion for the people who suffer from it. Thank You Miriam. ♥
Posted on: Sat, 29 Jun 2013 23:28:49 +0000
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