Now I lay here, I’ve gone to sleep; an Angel now without Batten Disease. I am normal and healthy, and very much at peace; no longer ill…I’ve been set free. Now I can see, and I can speak…our love and memories we both shall keep. I can fly and I can run; I can eat, and have some fun. My days not filled with tremors and jerks. No more medicine only sunshine bursts. Stay strong for me now, you’ll see me again. From heaven I am with you...beautiful Angel Wings I fan. Until then be patient, and remember each day: You cared for God’s Angel in spite of the pain…an earthly Angel given especially to you. I know you did everything you could do. You loved unconditionally and I still love you too. But in Heaven there is still much work to do…Our journey isn’t over; only separate paths we take…I know my time was brief on earth but Heaven couldn’t wait. Father heal their hearts for me and help them understand. The Angel on Earth went home you see…and it’s all part of your plan. Watch over those I left behind…family and friends…be with them each night. Bless my nurses, doctors and therapist alike, for without them Father, it would have been harder to fight. Send a cure and send it fast…a miracle Lord…a disease of the past! Bless the Angels you sent to help me each day…the prayer warriors who prayed and prayed. Bless those who battled to win my war. My mission, my goal is still Batten NO MORE!!! Bless those who spread word of this rare orphaned disease…that most have never heard of and many choose not to see. Prayer, awareness, and a map along the way…to honor those with…remember and locate. They network through the BDSRA…to never give up hope standing strong among their pain. Together they shall see, NOT ONE will die in vain!!! Please God, please help them win this fight! I will beg of you Lord each and every night. Through strength and support, the families unite. They each play a part…this battle their plight. Reward those in Heaven who gave of their life and the families on earth who sacrificed. Love, hope, and faith and a prayer crusade…let the wings of Batten Angels carry this plea far away. A cure, a treatment we beg you each day. We give thanks to you Father, the glory…and praise. Flying high to the Heavens in perfect unity; delivering this prayer, I’ve earned my Angel Wings. Amen…and God speed - I feel Ali is most definitely saying this...
Posted on: Wed, 17 Sep 2014 03:23:24 +0000
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