OMG, I cant even.... Best clinic visit EVER! Karter is doing so well... His heart has improved a teeny tiny bit more... its small but never the less its still squeezing a tid bit more than it ever has!We dont have to see clinic until they are here next, IN MAY. LONGEST IN-BETWEEN CLINIC VISITS EVER! Bloodwork in two mos, and they want us to take full advantage of his good health while we have it, as none of us know how long this will last. They told us they were gonna start paperwork for Make A Wish... I could barely swallow. I was ready to fill my pants! I am completely choked up and tearing as I write! I cant believe it. He has an EF of 40% which is amazing! His most recent has been the low 30s, which has been awesome for him!! I dont even know what to do with myself right now. I am feeling so incredibly blessed and so beyond thankful. We never would have imagined this over a year ago... I wished, and I prayed and I begged... And its working! Our boy is definitely a medical miracle, and I really hope he continues on the path of being a complete anomaly! My heart is. SO. Stinkin. Full. ~annnnnd breathe.....PHEW~ 💚 Ps. They also said Karter should be able to fly safely now without oxygen! So amazing! As he has always needed oxygen this far, as his sats would drop significantly... I dont even know!! Lol
Posted on: Thu, 15 Jan 2015 03:47:32 +0000