Ok, I have been near non functioning since November because my wbc got up to 57,000 and I was in the hospital, I had my 1st IVIG treatment December 3rd, a bone marrow biopsy on the 12th and need back up in the hospital with 4 pulmonary embolisms. I had another infusion on the 31st, still have being feeling like I am dying by the day, no energy, ache all over, could stay in bed all day everyday....which is not an option because I have fought through it daily and I am still working full time, any I saw the infectious disease Dr on Wed and I told him I was not doing any more infusions because I had convinced myself that the infusions were what was making me feel like I was slowly dying day by day, he begged me to keep on at least until it started to warm up. Skip to Friday... I told my husband, I am done taking all this damn medicine, I know that some of it is what is making me feel like I am dying a little everyday. So, I did not take my morning meds, I am a nurse and me and my director of nursing went over all of my meds and I have been taking topamax twice a day for migraines, among several others, a few of which cant be stopped cold turkey. Tonight will be the last night I take 1/2 of the topamax, and now I am only taking the coumadin for the pulmonary embolisms, which I have to take for at least 6 months, my Celexa.. No explanation needed, and 1/2 of xanax at night to go to sleep.I feel more alive the past 2 days than I have in the past few months. So I have another infusion on the 28th, hopefully I will not have any side effects. I really think it has been to topamax that has made me feel like death.
Posted on: Sun, 18 Jan 2015 23:32:25 +0000