Ok family and friends - putting it out there - we heard back from - TopicsExpress

Ok family and friends - putting it out there - we heard back from the USA - and the trial drug that I was hoping to be our answer - is not to be - the other possibilities of propanalol or thalidomide are now not options either - radiation is a very last resort - rubes mass is excruciatingly rare and they doubt any benefit would be gained. You can be disappointed - frustrated - gutted but know rubes is happy and healthy today - the mass is not effecting her day to day and that is something that should be celebrated - because for this we are so so lucky. We also have family all around us now whereas in Brisbane we had none - so things are as good as they can be expected to xxxxx

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