On my Medicare, they pay for my IVG> of Gamma Globulin by IV for my Immune Deficiency Disease IgG, which may cost from $4,000. to $8,000.00 per unit and I get my treatment every 2 weeks, so that can really add up! I wonder if I was on Obamacare, if they would have paid for it? I will be on this IV for the rest of my life, so I am very relieved that I am covered. Being on my Disability has not been easy, and hard to imagine my life without this treatment! It has helped me so much, you cannot even imagine what I have gone through to find out that I have this Disease. It has taken many years and many Doctors to find my real diagnosis! I was born with this, and no one knew that way back then! It is not HIV and not AIDES. I have been so thankful to have wonderful nurses come to my own home to give me my IV treatments. It takes about 3 hours for a treatment, then every 2 weeks another treatment, and so on. I really miss my nurse Jennifer Schymos Weinrauch I had for 2 years! We both love horror movies and would chat about the TV shows of The Walking Dead, Being Human etc. So thank you for all the wonderful times we spent together during my treatments. I do have another wonderful nurse, Bill, who has now taken over my IVs. I thought I would need a port put in, but I finally started to wise up, and soak my hands in warm/hot water, so my veins puff up! ( I should have known better) So, maybe I will have a port put in when I need it. So, with my Medical Marijuana and my IV Gamma Globulin (Plasma/blood product) I have been feeling so much better, not perfect, but at least I can live with it now. I will have good days and bad days, but I am not complaining! I have a great husband that has been through all this with me! He is a real trooper! I think I will keep him! LOL! I have Common Variable Immune Deficiency Compared to other human immune defects, CVID is a relatively frequent form of primary immunodeficiency, found in about 1 in 25,000 persons; this is the reason it is called “common.” The degree and type of deficiency of serum immunoglobulins, and the clinical course, varies from patient to patient, hence, the word “variable.” In some patients, there is a decrease in both IgG and IgA; in others, all three major types of immunoglobulins (IgG, IgA and IgM) are decreased. In still others there are defects of the T-cells, and this may also contribute to increased susceptibility to infections as well as autoimmunity, granulomata and tumors. The IgG class of antibodies is composed of four different subtypes of IgG molecules called the IgG subclasses. These are designated IgG1, IgG2, IgG3 and IgG4. Thank you all for listening to me
Posted on: Mon, 31 Mar 2014 20:26:28 +0000
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