Once agin Im posting on whats up with me and how Im often being treated or other. At that end of this you can search the links Ive spent hours researching. These are the best for what Im battling with. Couple thins I want straight. If you are a family or close friends of the family this is important to me, and likely those who are knocking on deaths door would agree with what Im saying. Im going to number just for easy reading and reference. 1. If Im home with my hair up but Im dressed casually for company then Im so-so pain level.... Thats were Im hurting yet functional. 2. Being that Im bearing the pain to walk around my home not mean Im ok. A few people have seen the attacks from the pits of hell, and all I can do is say pray and get cold packs. 3. I can not predict or prevent this from happening at any moment. 4. Its pretty much impossible. Its painful and deals with the bladder, kidney, and embarrassing bathroom issues Id never imagined it would get so rediculous. 5. 💥💥💥💥💥Oh my gosh. Just because Im walking around my home does not mean Im not right in the head, ok, and that Im just depressed, I have a home, and children to care for and school. Im in I tractable pain. If you dont know what it means look it up. Im leaving several years of research with them to so she could put it on your wall for others to learn. Thanks. If you dont read any of these at least read. This one: arachnoiditis.co.uk/index.php/epidural-steroid-injections/9-epidural-steroid-injections arachnoiditis.info/content/arach_spinal_cord_injury/arach_spinal_cord_injury.htm stopthepain.freeservers/arachnoiditis.html Read these letters of others who are dealing with aracnoiditis! ehealthforum/blogs/gemini0617/fda-letter-june-arachnoiditis-as-a-complication-of-epidural-steroid-injections-b29743.html More testimonies of epidurals and spinals causing Arachnoiditis and lawyers not helping, and doctors not diagnosing to Arachnoiditis kevinmd/blog/2005/01/patients-suffer-soaring-malpractice-claims.html Cyst from Arachnoiditis? tarlovdisease.populus.org/rub/11 burtonreport/infforensic/MedMalSpineAnesDilemma.htm Studies and statistics the medical world doesnt want exposed drmorgan.info/blog/arachnoiditis/ ninds.nih.gov/disorders/syringomyelia/detail_syringomyelia.htm Under cover special report on epidurals m.youtube/watch?v=QCbzXqrG0ic&desktop_uri=%2Fwatch%3Fv%3DQCbzXqrG0ic https://facebook/penelope.shimms/posts/1397945490447210 Obstetric epidurals and chronic adhesive arachnoiditis bja.oxfordjournals.org/content/92/1/109/T1.expansion.html It is obvious that The Standards Of Care need to be questioned. Questionable standards of care are the Root Cause of Arachnoiditis, according to Published Medical Research that has been ignored by those authorities in charge of setting Standards of Care. Because doctors are meeting the Accepted Standards Of Care does not prove that they are innocent and non complicit in causing Arachnoiditis. Doctors claim freedom from liability for Arachnoiditis injury based upon Standards that have never been subjected to medical scrutiny based upon scientific analysis and related research. Standards of Care involving serious Spinal Invasions seem to be based upon the accepted popularity and prolific numbers of procedures, which is the antithesis of science. Unquestioned Standards of Care indiscriminately performed on the human body equates to egregious medical malpractice. The current Standard of Care related to spinal procedures should be investigated. Failed Back Surgeries, Arachnoiditis, and the other unexplained disabling outcomes of Spinal Procedures cannot continue. science.gov/topicpages/e/equina+syndrome+due.html A fee low Arach victim posted this on our support group Every disease has Specialists who are equipped with the best available knowledge and treatment of the particular disease. Arachnoiditis is a medically categorized disease that is covered by medical/disability insurance, if by chance there is a correct diagnosis. An obvious shortage of Arach Specialists has caused unknown numbers of victims of this disabling disease to endure years of doctor searching, erroneous diagnosis, and excessive spinal invasions that are further damaging and contraindicated for Arach injury. I would expect modern medicine, especially the most prolific area of medical treatments, ie. spinal back problems, to be more knowledgeable and interested in Arachnoiditis, which is a known, incurable spinal nerve injury. The fact that Arach is widely thought to be medically caused, ie. Iatrogenic, may be why there is a lack of Interest and of Specialists normally involved, as in other chronic diseases. From my observation and personal experience there exists a lack of tracking the sequence of spinal invasions, their results, follow up, and correct MRI reporting, which equates to practicing medicine without appropriate technical scrutiny, caution, and accountability. The refusal to acknowledge the medical complicity that causes Arachnoiditis has emboldened the performance of Failed Back Surgeries and excessive unapproved ESI treatments,-- using chemicals with warning labels, not for spinal use. Meanwhile thousands of Arach injured victims of this medical indifference live with chronic pain, neurological disabilities, dysfunctions, ruined lives , - desperately hoping for knowledgeable Specialists to find a cure for this disease, widely thought to be medically caused. It sounds like a classic case of medical irony. Is the cure worse than the disease? If the disease is not life threatening why use a cure that is known to have possible life threatening results, then justify doing it by having the patient sign a legally prepared medical form releasing the doctor from any liability. Is this equal protection under the law for patients or is it Medical Abuse of Power ? In most instances the Patient is handed a pamphlet to read. In other cases the doctor will acknowledge that certain problems could occur but then minimizes any problems by saying, Dont worry youll be fine and back work in a few weeks. The emphasis is on doing the medical procedure.
Posted on: Sat, 29 Mar 2014 14:56:50 +0000