Our Rett family has lost yet another sweet girl. Each loss, - TopicsExpress

Our Rett family has lost yet another sweet girl. Each loss, whether we know them personally or not, are like punches in ones gutt. Each loss brings with it FIERCE determination to fight harder for a cure. Makes me realize the decision to be a part of the IGF-1 drug trial out of Boston wasnt really a choice but something we HAVE to do, not just for Olivia but for every single child living with this stupid, awful syndrome. R.I.P. sweet Brianna, you are now free to dance.

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