Our first CDH clinic went well. Our princess is almost 13 pounds now! They cut down the calories in her formula from 36 to 32 because she was gaining so much weight, which is uncommon for cdhers. We were prescribed a nebulizer to give her twice a day for a month to try to quiet a persistent cough that Mackenzie has had since she second surgery. Otherwise there were no concerns and our warrior is free from CDH clinic until Feb 9th. Although we wont be headed to childrens for CDH clinic we have follow ups with numerous departments as well as pediatrician visits just about every other day for all of January and February. Today we are home and as always pushing Mackenzie to try new things, this is her first time in an exersaucer. Although she cant bear any weight on her legs she is tolerating being upright. Thank you for all the love and support you all have shown our family.
Posted on: Wed, 14 Jan 2015 18:33:15 +0000
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