Our friends at Community Engaged Network for All cannot emphasize - TopicsExpress

Our friends at Community Engaged Network for All cannot emphasize enough the need to foster additional medical research for #JoubertSyndrome in order to bring about such exciting medical breakthroughs, which are all at the heart of #JSLIFE. Please stay tuned for the official launch of JS-LIFE (jsrdf.org/JSLIFE) soon. JS-LIFE is the goto place for families to gain a new, exciting and powerful information sharing experience. The information exchange built into JS-LIFE dramatically changes the ways of gathering data and expands thinking on research and the medical uncertainties that currently exist.

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