PKD WILL NOT BEAT US Mary Wu PKD Will Not Beat Me Not A Victim Posted: 21 Jun 2013 10:41 AM PDT “I think it actually takes a lot of guts for us to come to terms with this that we are not super heroines and it is not about limitations, but preservation to what we have here and now and going into the future.” This powerful statement came from my dear friend and two-time kidney transplant recipient, Mary Wu. This really spoke to me. I am learning a lot with age and through my health issues this year. Instead of focusing on things that others can do that may not be a practical life path for myself, I am focusing on the beautiful things that I can do and the opportunities that surround me. While these opportunities might be a lot simpler than some folks, they bring me great joy. I think that is what we are all striving for in life: happiness. I inherited the genes from my father that cause me to hit the ground running when my eyes open each morning. To try and accomplish as much as I physically can in one day. So much that as soon as I sit down and stop talking for the day, I am instantly asleep. I have been fortunate for the 10 years since my transplant that I have been able to work full-time and keep this go-go-go speed. While this has been shifted back to a lower gear over the past few months, I have full intentions to kick it back up a notch when my body allows me. The beautiful wisdom I am gaining as a 30-year-old is to not look at these times as full of limitations. Instead, realizing it is of more value to take the best care of myself today in order to preserve the health I have, in hopes to live the best quality of life today and embrace the future with Noah. The past few weeks out of the hospital have been stressful and full of doctor appointments and tests. They are still digging for the answer to my symptoms and my high pancreas levels. Last week two of my doctors were sold on the fact that I had CMV, a virus that can become a serious issue for those with suppressed immune systems, and two other doctors thought it was unlikely. This puts a patient in an awkward position of what to believe. I was at my family doctor’s office, Dr. Bixler, last Friday and he was prepping me for what the treatment would be for CMV, when all of a sudden we received the results that I tested negative for it. While this was great news, the doctors are puzzled yet again. Right now the game plan is to repeat some of the blood work and to do an endoscopic procedure to take a biopsy of my stomach and small intestine to rule out any other possible issues. Dr. Bixler I sat with my family doctor for 90 minutes discussing all of this. He sat by his computer as I sat next to him. He was drawing on paper to help describe what all of the results meant. Dr. Bixler talked, I asked a question. He explained another result, I asked a question. He mentioned my lipase number being high and looked at his computer for the result and I said off the top of my head that it was 1,223. It felt like we were discussing a patient. It didn’t feel like I was the patient. Rather than being afraid of everything that was going on and the possible treatment I would have to undergo, I instead soaked in as much knowledge as I could and asked as many questions as possible. By doing this, it empowers me knowing that I am learning and doing all I possibly can for my body to heal. During that visit, Dr. Bixler said something quite profound. I will leave you with his comment, in which I have thought about daily. He said, “Valen, you know one of the things I love about you is that you are not a victim of your circumstances.”
Posted on: Fri, 21 Jun 2013 23:26:00 +0000
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