PLEASE EVERYONE READ OUR STORY AND SHARE WITH YOUR FRIENDS AND FAMILY. We have about a month left to raise the money. Time is slowly slipping away. Please we need all the help we can get. This precious little girl is being tested for McCune Albright. She is my daughter. McCune Albright is a rare genetic disorder that can cause lifetime problems for her. I am trying to get her and I to a convention to learn more about McCune Albright, and to have a specialist look at her medical records, and help guide me through this. At the moment her doctor wants to put her on a medication called Tamoxifen. Tamoxifen is used on breast cancer patience and if Lizzy put on this medication she will need to use it for years. Only problem is there is no long term study about what it could do to her body. Please help me get to the convention so I can talk with the specialist and find a better way to treat her. I am also wanting to learn what I can do as a parent to make her life easier and what I can expect to happen to her as the years go on. Please as a parent I am asking for help. Everything helps. I have to cover the airfare, hotel stay, transportation, and eats. Even if you can only donate $5 that is a meal. Please read her story / share her story. I also invite you to research McCune Albright. https://youcaring/lizzy
Posted on: Mon, 10 Jun 2013 13:03:09 +0000
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