PLEASE SHARE! For people with Lambert-Eaton Myasthenic Syndrome (LEMS), there are no FDA-approved treatment options. Now, the Firdapse expanded access program -- launched by Catalyst Pharmaceuticals -- provides LEMS patients and their physicians access to Firdapse (at no cost) as a therapeutic option while...: bit.ly/12Dll7T. LEMS is a rare autoimmune disorder with the primary symptoms of muscle weakness. LEMS occurs when the immune system attacks the nerves that control the muscles. People with LEMS typically experience fatigue, muscle pain, and stiffness. The weakness generally occurs first in the lower extremity muscles, particularly the legs and hips. Other symptoms include weakness in the arms and shoulders, drooping of the eyelids, facial weakness, and difficulty swallowing. People with LEMS often report dry mouth, impotence, constipation, and feelings of light-headedness on standing (a symptom of autonomic nervous system involvement). LEMS can be life-threatening when the weakness involves the respiratory muscles.
Posted on: Fri, 12 Dec 2014 19:00:00 +0000
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