PRVO SREČANJE MARFANOVIH BOLNIKOV. Kljub redkosti Marfanovega sindroma v Sloveniji se nas je včeraj na prvem srečanju zbralo nekaj pacientov , ki bolehamo za Marfanovim sindromom. Nekateri izmed obolelih se zaradi obveznosti niso mogli udeležiti srečanja, toda ne skrbite. V prihodnosti se ponovno snidemo. Lepo je videti posameznike, si deliti izkušnje in zgodbe, ki so vse prej, kot prijetne. Toda kljub vsemu, vsakdo izmed njih poskuša ostati optimist in se boriti z močno voljo, optimizmom na svoji poti. Sedaj upamo, da nam uspe združiti poti v eno pot. Pot po kateri bomo hodili drug ob drugemu in se bodrili in vlivali pogum na poti življenja z Marfanovim sindromom. SKUPAJ SMO MOČNEJŠI! FIRST MEETING MARFANOVIH patients. Despite the rarity of the Marfan syndrom in Slovenia us yesterday at the first meeting brought together a number of patients with Marfan syndrome. Some of suffering as a result of the commitments are not able to attend the meeting, but do not worry. In the future, again snide. Nice to see individuals looking to share experiences and stories, all of which are earlier than pleasant. But nevertheless, everyone of them trying to remain optimistic and fight with willpower, optimism in his way. Now we hope that we can combine paths into one path. The path by which we walk alongside each other and encouraged each other and instilled courage in life to Marfan syndrome. Together we are stronger!
Posted on: Sun, 08 Sep 2013 08:45:55 +0000
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