Packing for the four hour drive one way to Alexs specialist. Just - TopicsExpress

Packing for the four hour drive one way to Alexs specialist. Just the driving time tomorrow will be eight hours which is a very long day for a child who has a metabolic disorder characterized by an inability to create energy. This is the first of atleast two trips we will make this month and it is all done in one day. It is exhausting for my son and exhausting for myself. It would be so much easier if we lived there. We are truly grateful for the wonderful specialists at Shandds. For any parent on a similar situation I encourage you to continue going there as the results can not be denied. if you would like to help facilitate Alex being moved closer to this hospital so he has emergency care, easy access to his specialists, and therapies then you can sign and share this petition and the share it with your friends and family. https://change.org/p/save-a-child-with-complex-medical-needs-and-autism Thank you and until we move Alex will struggle with the whole Florida does not have exclusive handicapped bathrooms and non-disabled people are usually in them and we will just sing..... https://m.youtube/watch?v=NCs8ufxnnYA

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