Patients, families and carers urged to share their experiences of palliative care Call to complete all-island survey of palliative care experiences A call has been issued for patients, families and carers to complete a major all-island survey of palliative care experiences. The Let’s Talk About survey is the first of its kind across Ireland and continues until the end of May. The survey asks people with illnesses which may not be cured to share their experiences both good and bad. This includes people living with conditions such as advanced respiratory disease, cancer, chronic kidney disease, heart failure or dementia. The survey can be completed online at letstalk-about.org. The survey is being led by the All Ireland Institute of Hospice and Palliative Care (AIIHPC) with support from the Health Service Executive (HSE) and Public Health Agency (PHA) in Northern Ireland. AIIHPC Director Paddie Blaney said: “Each story is valuable, hundreds of stories and more will be powerful.” Hardcopies can be obtained at (01) 491 2948, or [email protected]. Responses are confidential and take 15-20 minutes to complete. HSE Director of Advocacy, Greg Price urged those with experiences of palliative care to identify what works well and what can be improved. “The survey will provide a valuable insight into what improves the quality of life for people with palliative care conditions and help to inform how care and support is delivered.”
Posted on: Thu, 15 May 2014 09:48:15 +0000
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