Please can you support our EDS community and sign the below petition. If you and your child were diagnosed with a life threatening condition then it is important you spare a few minutes to sign, even if you are not affected please sign which will help us immensely. We need your help in order to keep research into VEDS going. Please sign this petition which only takes a minute to do, which may go a long way when we all come together. Dr Nazli Mcdonell is one of the few doctors who has being doing a lot of research into VEDS and unfortunately the latest research project that has been going on for the last 10 years has had to close in September 2013 which means all the data collected is about to be lost. We need this study to be reinstated as this will hopefully go a long way in the future treatment for people with EDS and Brain Aneurysms. Please help us and sign the petition. Thank you in advance. Thanks for sharing Everyday Cherished; A Family Fight with Vascular Ehlers Danlos Syndrome Teds VEDS Awareness & Matt Smith
Posted on: Sat, 16 Nov 2013 18:35:01 +0000
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