Please say lots of extra prayers for our family tonight and in the days to come. As you know gracie had a lung CT a couple of weeks ago-we hadnt been given results yet until today. Gracies pulmonary docs nurse called this morning & said he wanted to see Brian and me this afternoon and talk with us. My heart literally sank because I knew that was not a good thing. I have been sick at my stomach since then. I will update her caringbridge tonight with more details but for now I needed to give the short version so you could surround our family in prayers! My heart actually aches tonight..If you have never had to experience that kind of heartache you need to thank the good Lord - I personally have had to feel this heartache more times than I can count! Long story short he had talked with her transplant doc and her thorasic surgeon here (who did her last 2 lung surgeries) and they have decided she isnt ready for the transplant now because it would be Likely the outcome wouldnt be good. However, she needs another lung reduction surgery and she needs it within the next couple of weeks. He feels we need to take this window of opportunity before she possibly gets sick or starts going downhill more, etc.. Shock doesnt begin to explain what we are feeling because we were told In the past another reduction wasnt an option but here we are again with the this Is our best option right now scenario. The tops of her her lungs are so hyper-inflated again that they are squashing the good partd at the bottom & not allowing them to function as they should and that is causing the continual chest pain that she had been having for a couple of weeks now! You know I guess when things are going good, or so you think, and gracie seems to be doing well-it puts all the ugliness in the back of my mind, where I think, even if only for a split second, that the word transplant wasnt ever introduced to us and that she is gonna be ok! Obviously I never need to let my guard down.... My baby needs and deserves a break. I am mad, I am sad, I am angry, I am an emotional wreck, etc... right now. I ask that you pray with me and believe with me that this surgery will work wonders in her precious body & claim that, with me, over her life! Please share this post with anyone and everyone you know will uphold our angel in prayer!
Posted on: Tue, 03 Jun 2014 01:52:39 +0000
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