Please take a few minutes and watch this incredible video produced by Jaime Jaime L. Cirillo a few years ago. You will see several pictures of our daughter, Olivia Hernandez, her son Joshua Thomas, and Olivias Mom, Kari Amador (holding JT) all affected by NF2. Kari lost her battle at age 39. There are pics of Olivias entire family (including Paul, Mica and Tom and me) at NF2 conferences and marathons. Tom and I have had the honor of meeting and knowing many of the people in this video. We have watched several....far too many....lose their battle. Please learn about NF, and if you can....donate to the organizations who are doing research to find treatments and a cure. Thank you Jaime Cirillo for this beautiful tribute to our NF2 friends and family.
Posted on: Fri, 19 Sep 2014 16:08:13 +0000
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