Poor little Sami girl had a very bad day today. :( She will be put - TopicsExpress

Poor little Sami girl had a very bad day today. :( She will be put in the hospital on Thursday for tests and to get a central line/Picc line. We are going to do a couple of weeks TPN (thats nutrition totally through an IV) to give her entire digestive tract a rest. Then we will very slowly add in feeds, over a few months time. We are hopeful that this will be better for her. She needs nutrition, but she is miserable and in pain much of the time. We are at peace with this decision, but it has huge ramifications. Our Wish trip will definitely be affected, there will be new restrictions and dangers, and no swimming. :( Please be praying for our family as we embark on this new adventure. Please pray for Samis little body, that she will tolerate well and gain weight.

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