Psalm 62:5 “Yes, my soul, find rest in God: my hope comes from him.” Last night the Lord answered the prayers of many on Claire’s behalf. He blessed her with peaceful sleep. She slept from 9:30pm-3:00am with no awakenings or crying fits. When she woke up at 3am she had a bottle, and then got sick and lost most of it. After medicine to calm her heaving, she drank another bottle and slept until about 7:30 with only one or two crying spells. Then today she took two naps, and during both of them she was quiet and peaceful. I would say that is progress, and we are pleased. Claire seems much more rested, energetic, and more herself. Perhaps after a two more days of recuperating rest with the help of a sleep aide she will feel renewed. Despite the positive news, it is still evident she does not want to be messed with. She is completely intolerant of even the routine procedures. Things were not made easier for her today when we had to change her central line dressing after only three days. It hurts to see my daughter fretted and tired because I know this is only the beginning. 1 Peter 5:7 “Casting all your anxieties on him, because he cares for you.” There is no way I can help Claire psychologically deal with this situation, so I consistently hand this over the God. He has a greater love and capacity to help Claire than I, so I will continue to come to Him in her time of need. Claire tolerated her chemo well again today. Other than getting sick last night she seems to be doing very well. Still no evidence of irritation to the bladder, and no blood pressure drops during one of her treatments. It has seemed to be higher throughout the day. Praying the Lord will bring it down. Two days of treatment down, three to go. By God’s grace Saturday will be here soon without many side effects. Her appetite is limited to formula, cheerios, yogurt, and perhaps a bite of something else random, but it is enough to maintain her weight currently. For that I am thankful, but still praying for a more vigorous appetite to put on weight and gain nourishment need for healing and growth. Claire’s highlight of the night was dog therapy. A furry friend named Buffy stopped by. It was the first time she had met her. Claire immediately took to the dog talking to it, petting it, grabbing the collar, exploring her paws, and patting its back. It was a beautiful sight. I long for the day when Claire reunites with her own puppy Wrigley. I’m not sure who is going to be more excited, Claire or the dog. Overall, we continue to be blessed by those around us. Kindness and love come in the form of meals, visits, messages, financial support, prayers, friendship, and more. Claire is in remission, healing for her bacterial infections, and all our needs are met. Our family is united and cherishing the moments together. Everything seems sweeter now, I hope Jordan and I can maintain this new perspective on life when we get home and beyond Claire’s Leukemia. That in itself is a blessing. Right now we need the Lord to grant us rest; physical, mental, and emotional. Matthew 11:28 “Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls.” Our Heavenly Father knows our hearts, knows our needs, and knows how to make us whole. We come to him to restore us, so that we may continue on. God created the Heavens and the Earth in six days and rested on the seven; he understand our need to rest. Hebrews 4:16 “For we do not have a high priest who is unable to sympathize with our weaknesses… therefore approach the throne of grace with boldness, so that we may receive mercy and find grace to help in time of need.” Lord I come to you boldly in confidence asking you to restore our souls, renew our mind, and give our bodies rest. Claire, Jordan, and I have endured a lot since July 13, and you have met every need we have had up to now. Therefore, I am confident you hear our pleas tonight, and that you have a plan to meet them. We will witness your grace and mercy in your good and perfect time. Until that time give us the strength to endure with patience, love, and kindness so that we may care for our daughter effectively while being a witness to others for you. As I lay my head down and look to tomorrow, Lord I come asking you to -restore all of us to endure more -protect Claire’s body from chemo while allowing it to keep her cancer in remission -heal her infections and head cold (which I believe is improving) -increase her appetite to gain weight and nourishment -allow us time at home when it is safe for Claire to be away from Duke and back in our hometown Psalm 116:7 “Return to your rest, my soul, for the Lord has been good to you.” Amen, God has been good to our family.
Posted on: Thu, 19 Sep 2013 00:31:42 +0000
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