Reply to Sal Brunetto research MS sucks, had almost wished at one time that is what I had. Unfortunately mine false more along line of EMS it is Atrophy were all muscle disappears eats away as you try therapy the next two days your muscles paralyze and spasm with ticks, then the autoimmune neuropathy basically keeps the protein levels in CTS spine at 256-180 and other autoimmune markers instead of flowing out of spinal cord so I have four areas in the spine that show possible blockage first trial was to see if they could reduce the Inflammatory disease caused by this could they get flow but was no go stomach paralyzed more so they speed up like a heart pacemaker for now keeps food moving but there is fear of possible Barretts Esophagus cancer or Celiac Disease cancer as it did not develop until the autoimmune issue happened after the Los of my right foot. The specialist say they have never seen anything like this. So I was given three treatment plans and to be back by August 26th of 2014 but there is no way financially I can be done with two more trials plane tickets for two week stay there at their hospital plus client discount at Marriott near their hospital in Phoenix so started charity again in hope I can see them in November, they are not happy but I told them if they send me check I will book flight after trials if they pay for those too. I just get my SSI wife is my caregiver as not allowed to stand on left foot now do to pressure sore similar to what took right foot so weird. If it was not for the financial support of my family,high school friends,grade school friends I was estimated to be dead this year do to one diaphragm frozen 99% the other now 35% frozen stomach was moving food ever 248 or 284 hours which is why they put an Enterra device with three leads attached to stomach if it freezes completely I go to food tube. The Gasterology doctor said he will not until talking with Mayo and my Microbiologist Dr do an endoscopy because risk out ways benefit that I lost 15 pounds since he last saw me and he fears possible stomach cancer I would not with my current state survive surgery,so he will be talking to doctors this week that was all unexpected as I went to see him because stomach and lower felt like someone was trying to stab me from inside out. This has been a true testament to my FAITH god and me talk daily known at docs office as only therapist with schizophrenia :-) I just keep fighting and every cas,check,visa gift card,whole food gift card cry and thank god that I have been blessed by so manny as I look out my window and do get a view of Pikes Peak just wish snow would end. It was nice having dialog with you and for you doing research in similar field as it was for me when my hands started turning inward and I started dropping forks and basic utensils I knew something was wrong in a years time my Dr thought I would be dead at first but I am not and one SAINTSMAN BIG TIME CAME OUT OF NOWHERE AND COVERED MY HEALTH INSURANCE I NEVER MENTION HIS NAME AS I DO NOT KNOW IF HE WOULD WANT THAT but him Casey and her family, and like I said so many more from 20.00-hundreds to thousands from so many there was a week I think I cried every day because people I really just could never imagine saving my life, I became a Mental Health Therapist to be there for families and people not for the money but so many times talked to god after having my two girls wondering why. Maybe I would not financially be in my 40s and needing so much help. I have a friend getting married April 19th have to find card short term memory going too, but he wants to fly me round trip wife too but she has pets to care for so I will be going alone. I hope to see as many of you as I possibly can, I can only eat and drink gluten free products but hope I give you all a chance to see me even if it is a Starbucks thing with enough notice. GBY and believe it or not Facebook has been good I enjoy seeing good things in friends from afar!!!
Posted on: Thu, 06 Mar 2014 01:52:04 +0000
Trending Topics
Recently Viewed Topics
© 2015