Results for Graded Exercise Therapy (GET) in 2014 Action for ME survey actionforme.org.uk/Resources/Action%20for%20ME/Documents/get-involved/me-time-to-deliver.pdf : 23% of the sample reported on trying it. Total was 2018 so I presume its 23% of that. A little or very helpful: 35% No change: 18% Made a bit or much worse: 45% Im unhappy with Action for MEs commentary on this: Patients also reported, overall, finding GET less helpful than in 2008 (45% then compared to 35% now). ***This may be because people with M.E./CFS are self-prescribing GET, rather than working with a specialist therapist*** (see p 16). We continue to hear positive and negative experiences of GET from people with M.E./CFS and recognise that further investigation is needed to find why it may benefit some people and not others. (Page 16 doesnt give any quantitative data on it) Their own survey in 2008 found that 31.27% of those who had done GET under an NHS specialist had been made worse with it. This was not statistically different from the overall percentage (31.92% were made worse by GET). The other category which would include self-prescribed GET actually had a marginally lower rate of people saying it made them worse (28.93%). (see slide 9 at: afme.wordpress/5-treatments-and-symptoms/) Peter White loves the angle that the problem with GET is that it wasnt done under an appropriate professional and has previously quoted AfME coming up with excuses for GETs poor performance. Its frustrating to have a patient organisation helping him in this way. (See also my next post: https://facebook/tom.kindlonpwme/posts/632736420154221 )
Posted on: Sun, 18 May 2014 17:22:48 +0000
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