Right we are at $365; only $635. more to go to reach the goal of $1000 for her Mayleas birthday gift to help her get to a sandy beach!! HAPPY BIRTHDAY MAYLEA! WANTED! 100 people to donate $10 to raise $1000 for Mayleas Birthday Present! Mayleas mommy really wants to take Maylea on a trip to the beach to play in the sand; shes never been. As you look at the picture below of Maylea, you see a beautiful, sweet, happy girl. Her mommy is doing everything possible to keep her healthy and feeling good. Its been 7 months since her diagnosis, and during this time, its not been easy. In the last seven months we havent always been able to see her pretty smile. At times we saw pictures of a little girl with tubes running out of her nose, in a hospital bed, at one point for 45 days straight. Its easy to look at her beautiful, smiling face these days and think everything is perfect. The truth is - Maylea is still a very sick little girl. She is in what doctors call the honeymoon phase which occurs after DIPG patients are no longer having radiation. As Mayleas mother explained, Right now, Maylea is feeling wonderful, happy, and very content, but the truth is, in two months from now she may wake up and be limp on her right side or other horrific things I dont want to even mention. Now is when Mayleas mommy needs the help the most. With Morgan unable to work, medical bills, day to day living costs, and Maylea’s natural treatments that cost $500 a month, Morgan really needs our help! The time is now when Maylea is able to enjoy life to the fullest. Please help me by donating just $10 to Mayleas youcaring site. Its her birthday today, and she has been such a fighter! Please help reach this goal! Remember these words from Morgan... My daughter was a normal tiny 6 year old with bright eyes and so many questions, so full of energy and light. One day she woke up and brain cancer took that away from her. She went to her first MRI, first sedation, terrified and just wanting to go home with her little sister. I lost my sanity that day, my ability to be happy. She had her first surgery...a large bump sticking out where her soft little frame used to fit perfectly in her dress up clothes. She looked at it - Puzzled and sad. The next few days she went to slide with the other kids and her limp arm caught underneath her and put her in so much pain. That next week I started to wake her up every morning, put her in the car and drove her to a place every morning to be sedated 33 mornings. She would wake up furious and starving. No more school, no more playing. The radiation and steroids left her zoned in a trance sitting outside for hours, only moving her eyes for food. She began to breathe heavier and swell at a horrible rate. Kids and even parents would even point and stare at the swollen balloon that used to be my little beanpole. Some would openly make comments. Maylea never said anything...but she didnt understand why her stretch marks tore apart her skin and she had to sit in a wheelchair and watch other kids play like she did only a month before. All of this just to keep her alive a little longer. She ate two handfuls of pills every night...then after radiation she started back on chemo. She was in the hospital for over a month for a fatal pneumonia. She only had visitors and a small playroom to look forward to. Finally, getting out to get on a high dose of chemo that dropped all of her counts and gives her a UTI and an infection in her blood. Back to the hospital..she loses half of her hair and is getting a transfusion or two a day. To find out her tumor has grown slightly larger. Maylea Cadence Estridge, 6 years old in last month of kindergarten, woke up with a limp right side overnight...and was diagnosed with DIPG. A tumor inside her pons of her brainstem. Maylea was given 3-6 months to live with radiation. 5% live to 18 months...Somedays, I look at her sitting here smiling at me with her sparkling eyes and think there is no way she could die. Ill die right with her. Shes my best friend. DIPG is no diagnoses, its a death sentence that we as parents must choose what we are willing to put our child through, with such a dismal prognosis. -Mayleas mommy Thank you to everyone for their donations, gifts, cards and prayers. They are all truly appreciated. youcaring/fightformaylea
Posted on: Sat, 25 Oct 2014 12:16:13 +0000
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