Robyn begins her next round of antibody on Monday. Although the most common side effect is pain, Robyn really hasnt been well in between. All the pain meds really upset her stomach. Shes not much energy & no appetite. Even though shes not much energy shes an insomniac so thats hard because poor Millie had a vomiting bug for 12 days so the past few weeks its been busy in this house. Millie was just finished and Robyn has started vomiting. I just wish shed get a break! Today myself & Martina fly to London for the weekend. We are attending a Neuroblastoma conference where we will hear Nb experts from abroad speak about the most up to date treatments. We need to prepare for when Robyn finishes treatment here, so this opportunity is in invaluable. Also to meet up with other nb families is fantastic. When Robyn finished treatment back in 2009. I had no nb families to speak to, I felt completely isolated. We are very thankful to the Neuroblastoma Alliance for putting this together. Its going to be all a bit of a rush because as I get off the flight on sunday night, I dont go home because Robyn needs to be admitted the night before so we drive straight to Crumlin. Im hoping this round of antibody is easier on her and that she doesnt spend the whole 10 days as inpatient. Every day as inpatient Robyn will certainly lose wait so we want her out asap. She already lost weight this past few weeks, she cant lose anymore. Please keep Robyn in your thoughts as she faces this again. Thanks for all you support.
Posted on: Fri, 21 Nov 2014 09:02:35 +0000
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