SHOUT OUT TO WEST COAST/ OR / WA / ID / BC PEEPS (or anyone else interested)... I am also going to post this to Raising Awareness and Coats Disease Awareness: I have a big FSHD Gala and Auction event on January 24th in Bellevue, WA. Our beloved Karen Franklin will be flying out to attend. We had the brilliant idea of a get together for those of you close enough to drive and get together for a few hours - I think it would be amazing to have that personal connection and share stories / food / drink and see each other in person - get in those much needed hugs. I am located in Puyallup, WA. If this is something that you would be interested in doing, please respond to this post with your name and where you would be coming from.
Posted on: Mon, 17 Nov 2014 17:46:43 +0000
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