SMA Awareness!! Is there a cure for SMA? No. Currently there is no cure for SMA, BUT there are treatment/care options. 1. Non-invasive Care- this includes chest physiotherapy, cough assist and BiPAP. 2. Invasive Care- this includes a tracheostomy with ventilator support. 3. Palliative Care-this is when the parent would choose that the above options are not right for their child. It is often termed a “comfort care” approach in which alternative treatments such as oxygen and medication are used to keep the baby comfortable. The majority will not live past 1 year. This does not mean that there aren’t gray areas, and it certainly doesn’t mean once one path is chosen you no longer have choices or options for another. We have had many difficult decisions to make. We are doing a Non-invasive approach with Leo, but we believe that there are no wrong decisions. They are all horrible, and we are all doing what we think is best for our baby. And what is best could change. We have learned to have more patience when trying to reach a decision. We are very aware that more difficult decisions are likely to come our way, but there is no reason to stress over them now. We just pray that God will continue to guide us along his path he has chosen for us and Leo.
Posted on: Tue, 12 Aug 2014 02:06:46 +0000
Trending Topics
Recently Viewed Topics
© 2015