Sarah had an appointment today to adjust the dosage of the baclofen pump and refill the pump. We are moving up to a higher concentrate of the solution and added a bolus in the afternoon. We are anxiously awaiting the modifications for her chair which will be ready in the very near future. These modifications will help her with posture (the spasms pull her body to the right and have caused significant scoliosis) and general comfort level. There is also a calf panel that will make the leg/foot rests more comfortable. Sarah has been working on school work at home and will continue that and hopefully resume physical therapy soon, at least until the weather turns bad. I know its been a little while since we had a real update, honestly, shes been doing well, has been healthy and happy. ..but I know many of you pray for her often and we love seeing people out and about still wearing their Smiles for Sarah shirts. Thank you for your prayers, support and encouraging words!
Posted on: Mon, 13 Oct 2014 23:14:54 +0000