Sarah posts - This is my daughter Sophia. She is 4. From the time she was a baby she hit all her growth and developmental marks... But I knew something wasnt right bc she wasnt talking and instead she was extremely emotionally distraught and always had extreme meltdowns to the point where I knew it was past just being a temper tantrum. She was and is extremely smart and could dress herself fully by 2 years old. On the other hand, her only from of communicating was through screaming rages, hitting, scratching and forms of physical violence to herself and others. She never liked swinging or loud noises as well as being around other people, even close family, she would cry when they tried to hold her and hide her face if they tried to talk to her. When Sophia turned 3 she finally began to say a couple of words at a time.. But she continued her sensory issues and her social and learning abilities were delayed. She has always shown extreme aggression and violence in the time of her meltdowns or rages. She has a hard time with change and new places or transitions, and one very challenging issue for her is the textures of clothing she wears. She has a very limited choice in outfits, even to the point of wearing the same clothes everyday. Just last month after a very long awaited time of trying to figure out what was going on, Sophia was diagnosed with autism. I had always felt it in my heart so I was prepared for the diagnosis, I just wasnt prepared for how I would feel when they told me. Sophia is one in a million, no autism story or child is the same. Its a mysterious neurological disorder that leaves you waiting for progression and hoping for a better tomorrow. I never gave up on her, no one could convince me that it was something that she would grow out of bc I am her advocate and I will always be in her corner. She has an extremely high iq and she is incredibly amazing. I know she will touch many lives. As of now, I do not know the future, but we are getting her into some OT and speech therapy as well as a special education school to help with her social aspect. My message to You would be to know your stuff when it comes to autism or pdd-nos. If you know in your heart something is going on, dont let one doctor sway you to think otherwise and that your child will be ok. Bc mothers know best, and the past year of awaiting to know to know, I never gave up. A lot of tears and appointments but We finally got the answer! This diagnosis doesnt define her or her beauty. She is very loved and I couldnt be more thankful for this gift Ive been given. Until all the pieces fit, Ill never give up hope.
Posted on: Sun, 28 Dec 2014 14:49:23 +0000
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