Seems lots of nasty drama has been going on since I left for my camping trip among Chiari sisters. Not being here and fully clueless to any and all parts of it I find it odd that iv been de-friended and kicked out of a group. This makes it a little obvious who the players are and that they feel threatened by my big mouth. Lol I choose to stay out of the drama as iv been bitten a few times when my intentions were pure. But, if I find out after checking this out that the credit, hard work, dedication and loyalty of my fellow sister has been stolen and then discredited unfairly Im letting it be known Im not responding to it here. Im going straight to the top!!! Also, if I find that Chiarians are being diagnosed online when most doctors will full medical degrees cant and are doing it threw a crap organization that gives licenses threw a Cracker Jack box Im going to fight that all the way to court if need be. Chiari is extremely complicated and its secondary overlapping conditions make it almost impossible for the lame to figure out what symptoms are from what and who has what without a full neuro exam by a qualified doc and then referrals for testing and secondary condition referrals n testing. Im an old timer here and have become quite educated and can eek by on obvious MRIS scan readings. I can draw pretty pictures all over your scans too. But, it would be wrong to claim they were anything but guesses. It takes years n years to learn this stuff and tons of mentoring by qualified elders in the field. Others here too have learned a lot and are great assets to our communities. But, none of us are qualified to counsel people!! I dont care how good you have become at reading MRIs!!! Theres a million zillion other things besides Chiari that can be on these MRIs or not. If you are being asked to sign a release to be counseled by a Chiari minister they are no more qualified than me to diagnose you. I just read about 100 pages on what you have to do to become ordained as a minister of any kind online and basically thats nothing but showing your ID and paying $4 for a wallet ID card. I have always held into that we are special people in that those who truly suffer are among the most empathetic people in the world. This news that my Chiari sister is being pushed off a huge project that she started and worked very hard on really makes me sad. To climb over each other for recognition when its not due is whats wrong with society today. If you want to be recognized stand up and fight fair by supporting each others causes. Id much rather hold up a sister Chiarian for her job well done and get a little credit for holding her weight than to drop her on her face and have it come out later. We all know that in time good/truth/dignity/loyalty/dedication and hard work always eventually shine threw the darkness. Im not taking sides, arguing or listening to drama. Im simply going to investigate this and shed some light on the situation. My sisters deserve this as they have worked hard and proven their loyalty and dedication time n time again. Iv been around here for some time now and usually keep my mouth shut and just watch and listen. I know who can deff be trusted and this time the balls in their court and Im going to make sure it stays there. I have been a Chiari advocate for some time now but most of you are unaware that I also advocate for animal rights, welfare and protection. Iv been a big time role leader in many events and helped organizing them. I have a good reputation as a legal investigator and activist. Another words Im good at what I do and if theres a legal loop hole, an illegal activity or a moral injustice, I was the girl to go to. I was the one to get my hands dirty and not care because my cause was bigger than my feelings. I am asking my sisters to conciser what it is they truly want/need and where their motives are coming from for the good of everyone. It may be time to re-evaluate this because waves are getting high and reputable people are complaining. I understand that good intentions can go wrong and sometimes our actions may not be well understood. Please check yourself because I really dont want any one of us hurt more than what these illnesses already do to us. Please peeps, I know its difficult to get good sound medical advice for these conditions. I suffer, my mom, daughter, son, sister and a few more in my family so I feel your frustrations. I was one of Dr. Hs first US patients!! I understand but you will pay dearly if you choose to seek real medical advice (other than good guesses) from anyone online.
Posted on: Sun, 17 Aug 2014 18:17:30 +0000
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