Shawn is still sleeping. Lately this is how it is. He has been very dizzy, no appetite, and losing weight. His hair is also falling out again. I have to call the neurologist in the morning to see about scheduling his cranial MRI and or CT scan to rule out the prescence of a tumor. At his last procedure for chemo his fluids around his brain was elevated to 29 it was 33 3 months prior. He is on medication that is supposed to keep it down, but it isnt working. Normal for a child its 15. He has also been having more bone pain than normal and his doctor said that is concerning along with his weakness. All of this is just too much to think about and attempt to have happy holidays. We are so tired of this hell!! He has fought so hard the past 2 years and the smallest thought that there could be something else threatening his well being makes me so angry. All I can do is pray and stand strong in my faith that God will take care of our son. Please keep the prayers coming everyone. Thank you all xoxo mama
Posted on: Sun, 21 Dec 2014 20:19:47 +0000
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