She was very squirmy over night when they switched beds around midnight and then this morning she was definitely not liking her bath. She was squirming so much and arching her back that they gave her a sedative. I am hoping that it does not start building up in her system again, because I think that may have had something to do with her Neuro surgeon saying she was going on a down ward slope because she was too sedated to move around much. Going to have to talk to them about that today. Sometimes I feel so heloless. As a parent we want to put our children in a bubble sometimes and thats impossible. We also want to be reassured that whate er happens, that we can fix it and that is just not the case. It feels kind of like taking 2 steps forward abd one step back... Sometimes it takes a bit,to take,another step forward though and panic starts to set in. Keep the prayers coming everyone, I can see them working in her.
Posted on: Sat, 24 Jan 2015 11:10:24 +0000
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