So Rachel is in the hospital for her 40th bronchoscopy. Were - TopicsExpress



          

So Rachel is in the hospital for her 40th bronchoscopy. Were starting over, more or less, to see if they can find a way to stabilize her airways long enough for them to work through the problems with the transplant. They have confirmed that she is also collapsing above the larnyx. This is one place they have had some success with using a laser scarring procedure. So we may be able to stabilize a least a piece of it. She is having collapse episodes regularly now - some quiet terrifying. Its difficult to glance over at your wife and see her mouth open and no sound coming out, but the edges of her lips are turning blue. Then it hits you, If this doesnt open, we have about three minutes to get to the hospital. Its not something you get use to.
Posted on: Tue, 28 Oct 2014 14:13:34 +0000

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