So day 3 nearly over and when I woke up this morning I saw we had hit the target! OUTSTANDING, every penny is going to go on the best product, warranty and accessories we can get to ensure it lasts for as long as possible and gives him as much benefit as we know it can. We havent decided on a model yet, I have been on the web looking at every review site going and will decide in good time, not going to make a rash purchase with your money. So, day 3, pretty cool day all round, swimming at the super hot hydrotherapy pool was lovely and just what me and dom needed, I have absolute respect for when dom flips out when we are out now, so many times he has been having fun doing what ever we have been doing and suddenly he changes; I want to go home or Ive had enough. Ill admit I used to try and get him to stay out longer, to enjoy the wonderful things we planned for him but now I totally get it. These chairs, any chair, if your in it long enough there comes a point where it just feels horrible, one second your OK then suddenly you cannot get your posture or butt right and its hell, you just want to get into something else right away (at home we are aware of this as we hoist him between his chair, his recliner and his bed, three different styles and so three different pressure points, it has meant 1 year in the seat = not 1 pressure sore!), but outdoors we had neglected to adjust to this. So thats a lesson learned and we will now plan shorter trips or take an alternative seating option. I mentioned earlier that dom is starting to open up about his life in the chair, he has told me twice today that he likes having me in the chair, its the best week ever! he said too, he has been helping me with my driving, giving me turning tips when in tight spaces and even pulled me up hills today. He keeps asking me if I can see things from his point of view now and if I understand more? And I really am getting an idea of what he goes through, I know its temporary and I hate it, how would I feel if it was forever, and then on top of that find out that my forever is much shorter than everyone elses forever, I dont know if I would cope. Whilst out today I held a pee in as it was too much hassle to go all the way back along the trail to the loos, god knows what i would have done if id wanted a #2, I know he does this often from the colour of his urine and his reluctance to drink any fluids (he drinks like a fish when mum is about as he is most comfortable with her helping him with those issues. Something I have pondered over these last few days which i cannot accurately answer, only speculate from my own thoughts is the want to get up and do what everyone else does, when walking back from fishing there was a fitness bootcamp taking place on the beach, joggers, people on bikes, today was much the same, how would I feel seeing all that fun activity and lovely social bonds between them if I couldnt be part of it. Carol is looking into wheelchair football so we can remedy this a little. Im beginning to whitter on. Thank you all so much for your support, its nothing short of amazing how much you have donated in such a short space of time, I will complete this week and resume my walking life with my eyes a little wider and my mind a bit more open. xx
Posted on: Wed, 30 Jul 2014 21:07:56 +0000
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