So here we are. Update for Tuesday September 30, 2014. Not sure where to even start with this one so I may jump all over the place. Last Wednesday, (sept 24th) Jessica had a good day. She was walking with her walker when PT came in. She was happy. Chatty (with her new smaller trach). Brushing her hair, putting it up with one of her new favorite headbands Landa brought her, she was eating, drinking water and loved wearing a shirt, yoga pants and not having 15 tubes coming out of her. I did not stay the night at this new hospital because she always had a sitter with her. Somehow over the course of the evening she began to feel bad and started complaining of a migraine headache. Too the point she is crying and throwing up. She was still receiving medications although Im not sure the doseages and what might have been different. By Thursday morning she was miserable. Awful. Brett was with her first and then I came in. the room was very dark. Lights hurt her eyes. Sounds. Smells. She is still throwing up. She is whining. Crying. Crying out help me. We dont know how to help. They give her pain meds. She is becoming more agitated and not making sense when shes talking or when we ask her something. Brett and I were talking to her when I noticed her pulse ox finger (little red light like ET) bouncing up and down. I walked to the side of the bed and reached down to pick her hand up and put it back on the bed when she suddenly started to seize. I couldnt think of what it was called but knew she needed help. Everything happened so fast at this point! Does she have a pulse? Is she breathing? Is she going into cardiac arrest again? It happened so fast and yet in slow motion as nurses were coming in. The next thing we knew is she was being taken back to ICU and they needed to transfer her to a hospital equipped to handle her condition. That was a long wait!!! We are forever grateful to our friends Wendy and Kenny Jones w/Coastal Ambulance as they once again dispatched an ambulance to take our precious daughter minutes down the road. Lights and sirens blaring they scooped her up and whisked her off. Here at the new hospital she is once again sedated and hooked up to ventilator, ivs and anythi g else needed to support her tiny body. Even though she would open her eyes and blink she was not (and is not) aware of whats going on around her. She just stares at the wall. Or floor. Or past you. We talk to her and she doesnt seem to hear you or recognize you. Even when they do something to her she doesnt flinch. They say it may be part of the sedation or seizures or embolism or cardiac arrest or a lot of things. So let the testing begin. EEG. EKG. CAT scan. MRI. Tonight a spinal tap. As I sit here watching her sleep so peacefully with these boxing glove type mittens on she takes me back to when she was born. Her tiny little hands in mittens so she didnt scratch her face. Her tiny little body just fighting to gain strength. Wondering when she will wake up and yet not wanting anyone to wake my sweet baby up. Every time someone walks in and practically yells Hello Jessica!!!!! Im just going to check your sugar!!! Can you move your toes for me!!?? Squeeze my hand!! I want to throat punch them and say SHHHHHHHH!!!!!! Cant you see shes sleeping!! She is such a trooper and has been thru so much already! But we dont have any answers yet. We have a lot of questions as I am sure you all will to. In time, we will know more. Right now, our faith and patience are being tested. Again. So we will continue to wait. Continue to pray. Continue to hope that everything will come back positive and she will wake up from all of this and be ok. I know she will. When the Chaplain came in today, Keith, I asked him to pray with me and over her. With her blankie and prayer blankie on her we joined hands and prayed. I could not stop the stream of tears falling on her. Tears of sadness that my sweet girl is still going thru this but yet tears of happiness that she is still here with us and so many people are still praying for her. I dont know what I would do without that comfort. At home with her brothers and trying to even get a glimpse of what they are going thru and feeling. Im sure wondering when Mom is going to start staying home for good but ever so thankful for the amazing love and support from our community and school in helping. THANK YOU!! Again, I could not be here with her if it were not for so many friends helping me at home and behind the scenes. The amazing dinners! The laundry patrol. Chayces football coaches and the parents. My PTO board and all that have taken that over for me. Her dad, Brett, for always being at her side. Granma Sue, Granpa Bob, Aunt Jane, Aunt Bird, Uncle Gregg and Irene, Aunt Bebe, & Tiffany for coming to sit with her so she isnt alone, Paige for always making me laugh, my husband Josh because he is just downright amazing and my rock, John and Jose for keeping Brody, Greg and Diana, Leigh and Kyle, my favorite brat Morgan. It just goes on and on. God has BIG plans for her. I know that. She truly has touched so many lives. Still. I was at a store the other day when one of the girls worked there recognized me and asked if I was Prayers for Jessicas mom. Wow. Yes. Yes I am. So tonight, I will finish by saying how much we appreciate each and every one of you. Every single prayer and thought. Every child that includes her in their nighttime prayers and asks about her. I showed her a video from one of my very best friends son who told her he has been following her story and was glad she was walking and talking again and ended it with love always. Those two words speak volumes to me. Love always Michelle.
Posted on: Wed, 01 Oct 2014 00:48:41 +0000
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