So here we are. Update for Tuesday September 30, 2014. Not sure where to even start with this one so I may jump all over the place. Last Wednesday, 9/24, Jessica had a good day. She was walking with her walker when PT came in, she was happy, chatty (with her new smaller trach), brushing her hair, putting it up with one of her new favorite headbands Landa brought her, she was eating, drinking water and loved wearing normal clothes and not having 15 tubes coming out of her. I did not stay the night at this new hospital because she always had a sitter with her. Somehow over the course of the evening she began to feel bad and started complaining of a migraine headache, to the point of crying and throwing up. She was still receiving medications although Im not sure the dosages. By Thursday morning she was miserable. Brett was with her first and then I came in. The room was very dark because light hurt her eyes. Sounds. Smells. She was throwing up and crying out help me. We dont know how to help. They gave her pain meds. She is becoming more agitated and not making sense when shes talking or when we ask her something. Brett and I were talking to her when I noticed her pulse ox finger (little red light like ET) bouncing up and down. I walked to the side of the bed and reached down to pick her hand up and put it back on the bed when she suddenly started to seize. I couldnt think of what it was called but knew she needed help. Everything happened so fast at this point! Does she have a pulse? Is she breathing? Is she going into cardiac arrest again? It happened so fast and yet in slow motion as nurses were coming in. The next thing we knew is she was being taken back to ICU and they needed to transfer her to a hospital equipped to handle her condition. That was a long wait!!! We are forever grateful to our friends Wendy and Kenny Jones w/Coastal Ambulance as they once again dispatched an ambulance to take our precious daughter minutes down the road. Lights and sirens blaring they scooped her up and whisked her off. Here at the new hospital she is once again sedated and hooked up to ventilator, ivs and anything else needed to support her tiny body. Even though she would open her eyes and blink she was not (and is not) aware of whats going on around her. She just stares at the wall. Or floor. Or past you. We talk to her and she doesnt seem to hear you or recognize you. Even when they do something to her she doesnt flinch. They say it may be part of the sedation or seizures or embolism or cardiac arrest or a lot of things. So let the testing begin. EEG. EKG. CAT scan. MRI. Tonight a spinal tap. She is such a trooper and has been thru so much already! But we dont have any answers yet. We have a lot of questions as I am sure you all will to. In time, we will know more. Right now, our faith and patience are being tested. Again. So we will continue to wait. Continue to pray. Continue to hope that everything comes back positive and she will wake up from all of this and be ok. I know she will. When Keith the Chaplain came in today, I asked him to pray with me; we joined hands and prayed over her with her blankie and prayer blankie. I could not stop the stream of tears falling on her. Tears of sadness that my sweet girl is still going thru this, but yet tears of happiness that she is still here with us and so many people are still praying for her. I dont know what I would do without that comfort. We are ever so thankful for the amazing love and support from our community. THANK YOU! Again, we could not be here with her if it were not for so many family and friends helping. God has BIG plans for her. She truly has touched so many lives. So tonight, I will finish by saying how much we appreciate each and every one of you. Every single prayer and thought. Every child that includes her in their nighttime prayers and asks about her. I showed her a video from one of my very best friends son who told her he has been following her story and was glad she was walking and talking again and ended it with love always. Those two words speak volumes to me. Love always Michelle.
Posted on: Wed, 01 Oct 2014 03:20:49 +0000
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