So wanna hear the funniest task i have set myself for this year??!! I am going to try and get a famous Australian singer or actor/actress to record a clip promoting/advising about leukodystrophy.. We need to be heard, people need to know.. We need a bigger voice! I have set my bench mark high, but with (hopefully much luck and support) i will achieve this! If my son is going to leave this earth, i need to make sure he leaves with a mark of hope for others ❤
Posted on: Fri, 09 Jan 2015 15:31:27 +0000
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