So we are on the train headed to NYC and I wanted to make a(rare - TopicsExpress

Pray for Molly

So we are on the train headed to NYC and I wanted to make a(rare for me) update. We have had a lot of questions recently about what exactly Mollys surgery entails so I will try to explain it. Molly will be the 17th patient to undergo this surgery for this trial. The surgery portion of it will be making a small incision and nickel sized hole in her skull. A small(think spaghetti or Angel hair) catheter will then be threaded down between her cerebral hemispheres and into the pons where her tumor is. This portion of the surgery should take about 4 hours. After the catheter is in place, the infusion begins. This portion could take 8 hours or more. Molly has the opportunity to be the first patient in this trial to have the infusion done while NOT under full anesthesia. If everything checks out safety wise then they would bring her to a room in the PICU and do the infusion there. That is our hope and prayer because it would avoid her being under anesthesia for 12 hours. The infusion itself is of a solution called 124I-8H9. The 124I is a radioactive isotope of iodine. It is bonded to the 8H9 protein which is attracted to tumor cells. The protein goes to the tumor cells, which brings along the radioactive iodine to radiate the tumor cells right where they are. Hopefully I did a decent job explaining it...Ive included a link that explains some more details, but it tends to get pretty heavy on the medical jargon. -Mollys Dad clinicaltrials.gov/ct2/show/NCT01502917?term=dipg&rank=22

Posted on: Wed, 05 Nov 2014 12:44:31 +0000

So we are on the train headed to NYC and I wanted to make a(rare - TopicsExpress

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